“When we talk about Long Covid on planet Earth, I think the lower estimates are about 60 million and the upper estimates are at 400 million globally. It's not a disease of the wealthy worried well in the UK or the US or whatever, it's a disease of six to 10% of everybody on planet earth has ever had COVID-19, no matter where they are. So if the stakes are that high, why on earth can't we regain some of that battle spirit and momentum? I think it does come into kind of policy and politics.”

“There's some kind of indirect evidence suggesting that the sympathetic nervous is dysfunctional in POTS or Long Covid patients, and given the post-infectious nature, I suspect this is some kind of inflammatory, maybe autoimmune, reaction… probably our body is attacking our sympathetic nervous system”.

We speak to Frances Simpson one of the founders of the Long Covid Kids group and also to two young friends about how Long Covid has affected their lives.